SUPPORT

Alport Foundation of Australia

WE CAN SUPPORT EACH OTHER We can connect you with other patients and families for support, inspiration, information, and to share experiences. Becoming part of the Alport Foundation’s community is so important to reduce the feelings of distress, isolation and uncertainty that can come from living with Alport Syndrome. Become a member of the Alport Foundation of Australia’s network. Together we can support each other and make a difference.
Register your support online or download the Alport Foundation Community Membership form.

Why register?
•To communicate with other patients and families affected by Alport Syndrome
•To tell us more about yourself and your interests in this organization
•To be informed about the Foundation’s activities
•To receive periodic newsletters and other information
•To assist in the fund raising activities of the foundation
•To be more involved
•To tell us your family story

PATIENTS TELL THEIR STORY
Click here to read about Alex and Peter

Postal Address:
PO BOX 3277
Valentine.
NSW 2280
AUSTRALIA
Email: info@alport.org.au Our website: www.alport.org.au
Twitter: Alport Australia

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Graphic kindly provided by Zygote Media Group, Inc. www.Zygote.com www.3DScience.com Alport Foundation of Australia: ABN 87 956 459 275

OTHER SUPPORT AGENCIES

AGSA
The Association of Genetic Support of Australasia facilitates support for those affected directly or indirectly by genetic conditions throughout Australasia.
AGSA is a network of people who are affected by genetic conditions, either directly or indirectly. They have built up a contact register with over 850 genetic conditions plus 250 rare chromosome abnormalities. Visit the AGSA website or email them at info@agsa-geneticsupport.org.au

Centre for Genetics Education

The Centre for Genetics Education is dedicated to providing current and relevant genetics information to individuals and family members affected by genetic conditions and the professionals who work with them. Based at Royal North Shore Hospital in Sydney, the Centre's research and educational activities aim to bring genetics information to the widest audience possible.

http://www.genetics.com.au/home.asp

Dr Alison Blatt,
Urologist & Alport Foundation Board Member, spoke at the launch of
Genetic Awareness Week
September, 2010.

Click here to view Alison’s ALPORT SYNDROME presentation to AGSA

Click here to read Alison’s personal recount of
IVF to prevent ALPORT SYNDROME
“Pre-implantation Genetic Diagnosis IVF - My Story”