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Welcome to the Alport Foundation of Australia

In Australia kidney-related disease kills more people a year than breast cancer, prostate cancer or even road traffic accidents. Our aim is to raise the awareness of Alport Syndrome so that a greater number of patients and families affected by this genetic kidney disease will become aware of their condition years sooner than they might otherwise have been. This will not only give those people the opportunity to take health promotion steps to slow down their decline, but will also give them access to information on any emerging preventative treatments, under the guidance of our board which includes several eminent and highly qualified Australian clinicians and researchers.

We hope that you find this website useful and informative.

What is Alport Syndrome?

Alport Syndrome is a genetic disease of the kidneys, which can also affect the inner ear and eye. It is inherited, and estimated to affect at least 1 in 5,000 people. Limited access to expensive genetic testing means the actual number of people with this hereditary disease is unknown. Genetic kidney disease often goes undiagnosed or is discovered when it is too late: the kidneys are failing and the disease has already been unwittingly passed on to children. Usually the symptoms are mild and manageable in women. Diagnosis of females is very important, because an affected woman has a 50% chance she will pass the disease to her sons and daughters, 90% of males with Alport Syndrome will suffer renal failure by the age of forty. Therefore early diagnosis and treatment is vital in order to delay the need for regular kidney dialysis.

Read more about Alport Syndrome, treatments and how it is inherited...

Genetic Awareness 
Dr Alison Blatt, 
Urologist & Alport Foundation Board Member

Click here to view Dr Blatt’s 
ALPORT SYNDROME presentation
to the Association of Genetic Support of Australasia 

Click here to read Alison’s personal recount of
IVF to prevent ALPORT SYNDROME 
“Pre-implantation Genetic Diagnosis IVF - My Story”DR_BLATT_MOVIE.htmlDR_BLATT_MOVIE.htmlDR_BLATT_MOVIE.htmlGENETIC_AWARENESS.htmlGENETIC_AWARENESS.htmlGENETIC_AWARENESS.htmlshapeimage_4_link_0shapeimage_4_link_1shapeimage_4_link_2shapeimage_4_link_3shapeimage_4_link_4shapeimage_4_link_5

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       The ATHENA Study:

Mapping the Course of Alport syndrome   

If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide.


The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients.

Read more...