Alport Foundation of Australia
 

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Welcome to the Alport Foundation of Australia

We hope that you find this website useful and informative. Our aim is to raise the awareness of Alport Syndrome so that a greater number of patients and families affected by this disease will become aware of their condition years sooner than they might otherwise have been. This will not only give those people the opportunity to take health promotion steps to slow down their decline, but will also give them access to information on any emerging preventative treatments, under the guidance of our board which includes several eminent and highly qualified Australian clinicians and researchers.

What is Alport Syndrome?

Alport Syndrome is an inherited disease of the kidney, which can also affect the inner ear and eye. It is estimated to affect at least 1 in 5,000 people. 90% of males suffer renal failure by the age of forty.

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Genetic Awareness 
Dr Alison Blatt, 
Urologist & Alport Foundation Board Member

Click here to view Dr Blatt’s 
ALPORT SYNDROME presentation
to the Association of Genetic Support of Australasia 

Click here to read Alison’s personal recount of
IVF to prevent ALPORT SYNDROME 
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ATHENA STUDY 
Read about the ATHENA study
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                 The ATHENA Study:

Mapping the Course of Alport syndrome

If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide.


The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients.


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