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Professor Judy Savige,

University of Melbourne


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Welcome to the Alport Foundation of Australia

We hope that you find this website useful and informative. Our aim is to raise the awareness of Alport Syndrome so that a greater number of patients and families affected by this disease will become aware of their condition years sooner than they might otherwise have been. This will not only give those people the opportunity to take health promotion steps to slow down their decline, but will also give them access to information on any emerging preventative treatments, under the guidance of our board which includes several eminent and highly qualified Australian clinicians and researchers.

What is Alport Syndrome?

Alport Syndrome is an inherited disease of the kidney, which can also affect the inner ear and eye. It is estimated to affect at least 1 in 5,000 people. 90% of males suffer renal failure by the age of forty.

More information...

Dr Alison Blatt, 
Urologist & Alport Foundation Board Member, spoke at the launch of
Genetic Awareness Week

Click here to view Alison’s ALPORT SYNDROME presentation to AGSA

Click here to read Alison’s personal recount of
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Dr Sharon Ricardo and colleagues wind back the clock with kidney stem cells (16 May 2011)

The Alport Foundation of Australia are proud to be supporters of Dr Ricardo’s research project.

Scientists at Monash University’s Immunology and Stem Cell Laboratories (MISCL) have shown that they can make human stem cells from healthy adult kidneys without working on human embryos, circumventing ethical concerns around this research.  Read more or watch the ABC TV interview.......