Alport Foundation of Australia
 

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ABOUT US In 2007 we became aware of the need for an Australian support group for patients and families affected by Alport Syndrome, a genetic kidney disease. In August 2008 the Alport Foundation of Australia, a non profit organisation, was formed. This site is designed for the patients and their families affected by Alport Syndrome. Our goal is to spread the word through this website and brochures distributed to doctor’s surgeries, hospitals and treatment centres throughout Australia. We hope a greater number of people with Alport Syndrome will become aware of their condition years sooner than they might otherwise have been. This will not only give those people the opportunity to take health promotion steps to slow down their decline, but will also give them access to information on any emerging preventative treatments, under the guidance of our board which includes several eminent and highly qualified Australian clinicians and researchers. We hope that you find this website useful and informative. We welcome your comments and suggestions, and greatly appreciate your support!
OUR OBJECTIVES Supporting Australian patients and their families with this genetic kidney disease •Funding quality research into treatments and a cure •Raising awareness of this under diagnosed illness in Australia
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